Case Study: A Baby Born With Anencephaly

Case Study: A Baby Born With Anencephaly

HLT 520 Week 8 Discussion 1 Latest-GCU

A baby is born with anencephaly, or absence of the entire brain above the brainstem. The brainstem is intact, which means that the baby can breathe and have a heart beat and blood pressure, but there is no chance for any human brain function or cognition, due to this birth defect. The health care team begins to educate the mother, since children with this deficit generally die shortly after birth. However, the mother is devoutly religious, and her minister has told her that if she prays hard enough to God, that God will work a miracle and her baby’s brain will heal itself. She is insistent that all possible care be given to her baby, including a months-long stay in the ICU, constant care by a caregiver, regular brain scans, and other expensive modalities. The hospital, finding her adamant, asks the court for guardianship of the baby, with the medical plan to provide only maintenance care with no life-prolonging techniques until the baby dies. What are the ethical issues at play here? How do the principles of autonomy, beneficence, nonmalfeasance, and justice manifest themselves? If you were called as an ethical consultant, what would you do/recommend?

HLT 520 Week 8 Discussion 2 Latest-GCU

A 94-year-old woman is admitted to your hospital with dehydration, trouble breathing, and possible kidney failure. She is clearly in advanced Alzheimer’s, weighs about 95 pounds, and shows multiple bruises on her body. She cannot talk. Her caregiver attributes the bruises to a blood disorder that reduces clotting. What are your thoughts about this situation? What kind of investigation would you conduct? What actions would you take to be in compliance with ethical principles

GCU HLT 520 Bioethics Interview Assignment

Details:

1) Contact the chair of a local hospital’s bioethics committee and interview him/her regarding the use of the committee at that facility, how the committee functions, how it makes decisions and recommendations, and the chair’s views on the impact the committee has had on the facility. If possible, attend one of the committee’s meetings.

2) Write a paper (1,250-1,500 words) that describes your findings and observations. Include additional resources that support, reinforce, or even challenge your findings and observations.

3) Prepare this assignment according to the APA guidelines found in the APA Style Guide, located in the Student Success Center. An abstract is not required.

4) This assignment uses a grading rubric. Instructors will be using the rubric to grade the assignment; therefore, students should review the rubric prior to beginning the assignment to become familiar with the assignment criteria and expectations for successful completion of the assignment.

ADDITIONAL INFORMATION;

Discuss anencephaly in new born babies

Introduction

The life-threatening condition of anencephaly, also known as spina bifida, is one of the most devastating diagnoses a parent may receive. Anencephaly is a neural tube defect that results in the baby being missing parts and/or all of their brain, skull and scalp. The condition occurs when the neural tube does not completely close during pregnancy, which can cause serious problems for babies born with anencephaly. Infants born with anencephaly may also be missing parts of the spine, eyes and back of the neck. Most infants diagnosed with anencephaly pass away shortly after birth due to complications caused by this condition; however some survive longer than average because they have been treated aggressively in their earlier stages or through surgery later on in life.

Anecephalic infants are missing parts and/or all of their brain, skull and scalp.

Anencephaly is a neural tube defect (NTD) that occurs in new foetuses. An NTD is a birth disorder that affects the brain, spinal cord and other parts of the body.

The most common types of anencephaly are:

  • Spina bifida cystica with or without meningocele;

  • Spina bifida occulta;

  • Anencephaly with hydrocephalus (hydrocephalic ventricles).

Anencephaly is the result of the neural tube not completely closing while a baby is in the womb.

Anencephaly is the result of the neural tube not completely closing while a baby is in the womb. The neural tube is an embryonic structure that forms during early pregnancy and eventually seals off to become your child’s backbone. If it doesn’t close, then he or she will be born with anencephaly.

The baby will have no skull and only a brain stem. This often means that the baby won’t survive very long, as he or she cannot breathe on their own, Anencephaly is a genetic disorder, which means that it’s caused by an error in your genes. In most cases, the cause is unknown..

The condition typically occurs between 23 to 26 days after conception.

Anencephaly is a condition in which the Neural Tube does not close completely. This can cause severe brain damage and death, but it’s not always fatal. If a baby has anencephaly and survives, he or she may have some disability or disability with speech, hearing, sight or motor function.

In most cases of anencephaly (also called spina bifida), there will be no visible defect on the outside of your child’s body as they grow up because this condition occurs within the embryo itself. In other words: The neural tube forms during pregnancy when you are carrying your baby inside yourself!

All babies with anencephaly will pass away shortly before or after birth.

All babies with anencephaly will pass away shortly before or after birth. They may die in the womb or shortly after birth, but they will not live beyond 3 months.

The baby’s life is limited due to the fact that there is no brain tissue in its skull. The head and body are formed from one piece of skin which grows over time until it forms a head with eyes, ears and nose as well as other organs such as lungs and heart valves (which help keep blood flowing through your body). Anencephaly occurs when one side of this growth plate fails to develop correctly at around 14 weeks of pregnancy causing it not to form properly during pregnancy resulting in an abnormally formed brain cavity without any cerebrum (brain).

There is no cure for anencephaly at this time.

There is no cure for anencephaly at this time. The condition is a devastating diagnosis for parents, who will want to do everything they can to support their child in the coming years. However, there are no known causes of anencephaly and it’s not contagious like other birth defects such as spina bifida or Down Syndrome.

Anencephaly is a neural tube defect that causes severe brain malformations and incomplete development of the skull. Babies born with anencephaly have no brain, most of their brain stem and only parts of their spinal cord.

Infants born with anencephaly may also be missing parts of the spine, eyes and back of the neck.

Anencephaly is a condition in which the brain and skull do not develop, resulting in an abnormally small head. The eyes and spinal cord are also affected by this disorder.

The most common symptom of anencephaly is a large head that may contain no more than two weeks of fetal development. If you have concerns about your baby’s development, contact your healthcare provider right away.

An infant born with anencephaly will likely be diagnosed before birth because it can be detected through ultrasound tests performed soon after conception. However, some babies may go undetected until they’re born because they don’t show any signs of abnormalities while still in the womb or immediately after being delivered by Caesarean section (C-section).

Anencephaly affects 1 in 100,000 live births globally.

Anencephaly affects 1 in 100,000 live births globally. The frequency of the condition in different countries varies from country to country, but it appears that more boys than girls are born with anencephaly. In the United States, for example, the ratio of male to female babies born with anencephaly is approximately 2:1 (i.e., two males out of every three).

The condition is a devastating diagnosis for parents.

Parenting is a difficult task. It takes time, energy and commitment to raise children. Parents often go through many struggles with their children as they grow up and become independent adults. When parents learn that their baby has congenital anencephaly, they will be devastated by this diagnosis.

Anencephaly can occur anytime during pregnancy if certain genes are not passed on from an embryo’s mother to its father or from one parent to another during fertilization (when sperm meets egg). Anencephaly occurs when these genes do not work properly causing a baby’s skull not completely closing during pregnancy which leads to brain damage or death before birth.

Conclusion

anencephaly can be a difficult and heartbreaking diagnosis for parents. It’s important to remember that there is no cure for this condition; however, with proper care and support, babies born with anencephaly may live long enough to experience their first smiles.


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